Urban Health, Social Participation, and Praxis: Experiences in Brazil and the United States

Nina Wallerstein; Paulo Santos de Almeida; Elizabeth Dickson; Lorenda Belone; Prajakta Adsul; Belkis Jacquez; Christina Alaniz; Rosilda Mendes; Marco Akerman

doi:10.37916/arq.urb.vi38.684

Authors

Nina Wallerstein University of New Mexico https://orcid.org/0000-0002-1969-0799
Paulo Santos de Almeida University of São Paulo https://orcid.org/0000-0003-3240-4037
Elizabeth Dickson University of New Mexico https://orcid.org/0000-0003-1248-368X
Lorenda Belone Center for Participatory Research, College of Population Health, University of New Mexico https://orcid.org/0000-0003-3123-4881
Prajakta Adsul Center for Participatory Research, College of Population Health, University of New Mexico https://orcid.org/0000-0003-2860-4378
Belkis Jacquez Center for Participatory Research, College of Population Health, University of New Mexico https://orcid.org/0009-0009-5034-4710
Christina Alaniz Center for Participatory Research, College of Population Health, University of New Mexico
Rosilda Mendes Universidade Federal de São Paulo https://orcid.org/0000-0001-5680-1657
Marco Akerman Faculdade de Saúde Pública da Universidade de São Paulo https://orcid.org/0000-0003-1522-8000

DOI:

https://doi.org/10.37916/arq.urb.vi38.684

Keywords:

quality of life, engagement, local

Abstract

Sustainable cities need considerations of social participation toward the real changes to the inclusions and better decisions on own driving. Social participation within Urban Health and research by community social actors worldwide has been built on the effective contribution of community participation, to social movements and organizing for health and social justice. This paper builds on this perspective to expand our global knowledge about community participation in research through a dialogue between experiences and contexts in two countries in this approach, the United States and Brazil, considering the urban effects and inclusions. We first focus on differences in political and scientific contexts, and academic perspectives and then present how, despite these differences, similarities exist in values and collaborative methodologies aimed at engaging community partners in democratizing science and knowledge construction. We present a set of case studies, from the U.S. and from Brazil, which illustrate similar multi-level processes using participatory research tools to contribute to social mobilization, community empowerment, and the transformation of inequitable societal conditions in urban centers toward sustainable cities. Despite different processes of evolution, we observed a convergence of participatory health research strategies and values that can transform science, and ambiance in our commitment to reduce health and social inequities and improve community wellbeing.

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Author Biographies

Nina Wallerstein, University of New Mexico

Nina Wallerstein is a Distinguished Professor of Public Health, Director of the Center for Participatory Research, College of Population Health, University of New Mexico. She has worked for over 35 years in empowerment education and participatory research in the United States and has collaborated with Brazilian colleagues since the late 1990s.

Paulo Santos de Almeida, University of São Paulo

Professor Doutor na Escola de Artes, Ciências e Humanidades da Universidade de São Paulo, no Programa de Pós-Graduação em Sustentabilidade e no Bacharelado em Gestão Ambiental. Visiting Scholar na UCSD (2014) e UNM (2023); Membro da Comissão de Direito Humanos da Universidade de São Paulo. Advogado.

Elizabeth Dickson, University of New Mexico

Linked to the College of Population Health, University of New Mexico.

Lorenda Belone, Center for Participatory Research, College of Population Health, University of New Mexico

For the past 23 years, Dr. Belone has been engaged in community-based participatory research (CBPR) with an Indigenous paradigm focused on health disparities with tribal nations of the southwest.

Christina Alaniz, Center for Participatory Research, College of Population Health, University of New Mexico

Christina Alaniz is the Program Coordinator for the Center for Participatory Research within the College of Population Health at the University of New Mexico. She recently graduated from the University of New Mexico with her Master of Public Health, concentrating on community health.

Rosilda Mendes, Universidade Federal de São Paulo

Professora sênior da Universidade Federal de São Paulo e coordenadora do CEPEDOC Cidades Saudáveis-Centro Colaborador da OMS. Atua na área de promoção da saúde e saúde coletiva.

Marco Akerman, Faculdade de Saúde Pública da Universidade de São Paulo

Professor Titular do Departamento de Política, Gestão e Saúde da Faculdade de Saúde Pública da Universidade de São Paulo; médico; Especialista em: Saúde Pública e Medicina Social pela Universidade Federal de Minas Gerais e em Gestão Hospitalar para o Setor Público - Fundação Getúlio Vargas. Mestrado em Planejamento e Financiamento do Setor de Saúde e PhD em Epidemiologia e Saúde Pública - Universidade de Londres; Especialista em Ativação de Mudanças na Graduação de Profissionais de Saúde - FIOCRUZ; Livre-Docente - FSP/USP; Diretor do CEPEDOC Cidades Saudáveis.

References

ADSUL, Prajakta; NAIR, Uma S.; TAMI-MAURY, Irene; MADHIVANAN, Purnima; KANO, Miria. Incorporating Participatory Approaches and Implementation Science Toward an Integrated Research Paradigm to Promote Equity in Cancer Prevention and Control Research for Sexual and Gender Diverse Populations. Annals of LGBTQ Public and Population Health. v 3.1: 41-62. 2022. Disponivel em: https://connect.springerpub.com/content/sgrlgbtq/3/1/41?implicit-login=true. Acessado em: 15 ago. 2023. DOI: https://doi.org/10.1891/LGBTQ-2021-0016

ADSUL, Prajakta; MYERS, Katie; JAFFE,TALYA; et al. Centering community voices through community engagement studios for dissemination of and engagement in research. Presentation at the American Public Health Association Annual Meeting. 2022. Disponivel em: https://apha.confex.com/apha/2022/meetingapp.cgi/Paper/514484. Acessado em: 15 ago. 2023.

BEATTIE, Helen M.; FITZGERALD, Courtney A.; HOLMES, Breena. Impact of Engaging Students in Health Survey Data Analysis and as Full Partners in School Change: Results From a Mixed Methods Study. Health Promotion Practice. Disponivel em: https://doi.org/10.1177/15248399211048461. Acessado em 15. Ago.2023 DOI: https://doi.org/10.1177/15248399211048461

BELONE, Lorenda et al. Academic positions for faculty of color: combining life calling, community service, and research. In Wallerstein, Nina; et al (Eds.), Community-based participatory research for health: Advancing social and health equity, 3a. ed., p. 265–271). San Francisco, CA: Jossey-Bass. 2018.

BELONE, Lorenda; WERITO, Vincent. K’é Bee ‘Ahi'na’anish: Mentorship while utilizing a Diné-Centered Community-Based Participatory Research Approach. In VALLEJO; WERITO, Vincent (Eds.), Transforming Diné Education: Innovations in Pedagogy and Practice. University of Arizona Press. 2022. DOI: https://doi.org/10.2307/j.ctv2c3k1c4.10

BELONE, Lorenda; TOSA, Janice; SHENDO, Kevin, et al. Community based participatory research principles and strategies for co-creating culturally-centered interventions with Native communities: A partnership between the University of New Mexico and the Pueblo of Jemez with implications for other ethno-cultural communities. In ZANE, Nolan; BERNAL, Guilhermo; LEONG, Frederick (Eds.) Evidence-Based Psychological Practice with Ethnic Minorities: Culturally Informed Research and Clinical Strategies, p. 199–220. American Psychological Association, Washington, DC. 2017. DOI: https://doi.org/10.1037/14940-010

BELONE, Lorenda; RAE, Rebecca; HIRCHAK, Katherine et al. Dissemination of an American Indian Culturally Centered Community-Based Participatory Research Family Listening Program: Implications for Global Indigenous Well-Being, Geneology, v. 4 (99); doi:10.3390/genealogy4040099. 2020. Disponivel em: https://doi.org/10.3390/genealogy4040099. Acessado em: 15 ago. 2023. DOI: https://doi.org/10.3390/genealogy4040099

DICKSON, Elizabeth; PARSHALL, Mark; BRINDIS, Claire D. Isolated voices: Perspectives of teachers, school nurses, and administrators regarding implementation of sexual health education policy. Journal of School Health, 90(2), 88-98. 2020. Disponivel em: https://pubmed.ncbi.nlm.nih.gov/31813167/. Acessado em 15 ago. 2023. DOI: https://doi.org/10.1111/josh.12853

DICKSON, Elizabeth; BRINDIS, Claire D. The double bind of school nurses and policy implementation: Intersecting the street-level bureaucracy framework and teaching sexual health education. In The Journal of School Nursing (Vol. 37, Issue 4, pp. 280–291). 2021. Disponivel em: https://doi.org/10.1177/1059840519868764. Acessado em 15 ago. 2023. DOI: https://doi.org/10.1177/1059840519868764

DICKSON, Elizabeth; BRAKEY, Heidi Rishel; WILSON, Persephone et al. Classroom voices: youth perspectives to direct school-based sexual health education. Sex Education, 1-18. 2023. DOI: 10.1080/14681811.2023.2218267. Disponivel em: https://www.tandfonline.com/doi/full/10.1080/14681811.2023.2218267. Acessado em: 15 ago. 2023.

GOHN, Maria da Gloria. Movimentos sociais na contemporaneidade. Revista Brasileira de Educação v. 16 n. 47 maio-ago. 2011. Disponivel em: https://www.scielo.br/j/rbedu/a/vXJKXcs7cybL3YNbDCkCRVp/?lang=pt#. Acessado em 15 ago. 2023. DOI: https://doi.org/10.1590/S1413-24782011000200005

IBGE – Instituto Brasileiro de Geografia e Estatística. (2010) Censo Demográfico 2010. Disponivel em: www.https://www.ibge.gov.br/. Acessado em: 15 ago. 2023

INSTITUTO CIDADES SUSTENTÁVEIS. (2023) Disponivel em: https://www.cidadessustentaveis.org.br/inicial/home. Acessado em: 15 ago. 2023

ITON, Anthony; ROSS, Robert K.; TAMBER, Pritpal S. Building Community Power To Dismantle Policy-Based Structural Inequity In Population Health. Health Affairs. 41:12, 1763-1771. 2022. Disponivel em: https://www.healthaffairs.org/doi/10.1377/hlthaff.2022.00540 . Acessado em: 15 ago. 2023. DOI: https://doi.org/10.1377/hlthaff.2022.00540

LUCERO, Julie E.; BOURSAW, Blake; EDER, Milton M.; GREENE-MOTON, Ella et al. Engage for Equity: The Role of Trust and Synergy in Community-Based Participatory Research. Health Education and Behavior, 47(3): 372-379. 2020. Disponivel em: https://pubmed.ncbi.nlm.nih.gov/32437290/. Acessado em: 15 ago. 2023. DOI: https://doi.org/10.1177/1090198120918838

MARQUES JÚNIOR, Jose Jair. Parque Augusta no Município de São Paulo: instituições estatais e não estatais envolvidas na consolidação desse equipamento urbano e as dinâmicas de negociação. Cadernos Jurídicos, São Paulo, ano 20, nº 52, p. 91-105. 2019. Disponivel em: https://www.tjsp.jus.br/download/EPM/Publicacoes/CadernosJuridicos/cj_n52_06_1_parque_augusta.pdf?d=637123720336587751. Acessado em: 26 jun. 2023.

PARKER, Myra; WALLERSTEIN, Nina; DURAN, Bonnie et al. Engage for Equity; Development of Community-based Participatory Research Tools. Health Education and Behavior 47 (3): 359-372. 2020. Disponivel em: https://pubmed.ncbi.nlm.nih.gov/32437292/. Acessado em 15 ago. 2023. DOI: https://doi.org/10.1177/1090198120921188

SANTOS, Pedro Pinto, FERREIRA, Tiago Miguel. Social Vulnerability in the Lisbon Metropolitan Area. In: Ferreira, T.M. (eds) Multi-risk Interactions Towards Resilient and Sustainable Cities. Advances in Sustainability Science and Technology. Springer, Singapore. 2023. Disponivel em: https://doi.org/10.1007/978-981-99-0745-8_3. Acessado em 15 ago. 2023. DOI: https://doi.org/10.1007/978-981-99-0745-8_3

WALLERSTEIN Nina; MENDES, Rosilda; MINKLER, Meredith., ARKEMAN, Marco. Reclaiming the social in community movements: perspectives from the USA and Brazil/South America: 25 years after Ottawa, Health Promotion International, v. 26, Issue suppl_2, 2011. Disponivel em: https://doi.org/10.1093/heapro/drar077. Acessado em 15 ago. 2023. DOI: https://doi.org/10.1093/heapro/dar077

WALLERSTEIN, Nina; OETZEL, John G.; SANCHEZ-YOUNGMAN, Shannon et al. Engage for Equity: A Long-Term Study of Community Based Participatory Research and Community Engaged Research Practices and Outcomes, Health Education and Behavior, 47(3): 380-390. 2020. Disponivel em: https://pubmed.ncbi.nlm.nih.gov/32437293/. Acessado em 15 ago. 2023. DOI: https://doi.org/10.1177/1090198119897075

WERITO, Vincent; BELONE, Lorenda. Research from a Diné-centered perspective and the development of a community-based partnership. Health Education & Behavior, 48(3), 361-370. 2021. Disponivel em : https://pubmed.ncbi.nlm.nih.gov/34080481/. Acessado em 15 ago. 2023. DOI: https://doi.org/10.1177/10901981211011926